This past weekend, I ran a 5K race for a classmate of Bronwyn's who has Rett's Syndrome, a rare disorder that affects girls almost exclusively. I ran the race for Ella, and in memory of Bronwyn. It felt so good to do something tangible to help with finding a cure for Rett's. Having a child with a rare disease or syndrome can leave the parents feeling helpless and frustrated because funding for research is limited, and so are the options for meaningful treatment.
I made this little flag that I wore in rememberence of Bronwyn. It was an emotion-filled run, but healing as well.
I plan to run again next year, and to set a fundraising goal for myself! Stay tuned.