This past weekend, I ran a 5K race for a classmate of Bronwyn's who has Rett's Syndrome, a rare disorder that affects girls almost exclusively. I ran the race for Ella, and in memory of Bronwyn. It felt so good to do something tangible to help with finding a cure for Rett's. Having a child with a rare disease or syndrome can leave the parents feeling helpless and frustrated because funding for research is limited, and so are the options for meaningful treatment.
I made this little flag that I wore in rememberence of Bronwyn. It was an emotion-filled run, but healing as well.
I plan to run again next year, and to set a fundraising goal for myself! Stay tuned.
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3 comments:
That's wonderful, and yes, I imagine putting that emotion and love for Bronwyn into channeled physical exertion, and knowing you were contributing to helping someone connected with her must have felt very right, along with good and healing. The flag you made to honor Bronwyn is lovely as well!
You are amazing! You took a step, reached out and healed a little in the process.
I think of you often, pray for you and hold you in my heart. We've never met, but you have made such an impact on me.
God bless you.
Thanks so much for your support, Victoria and Mimi. Healing is hard work, but it seems that it's more and more possible with every day (and is more possible with friends to hold you in their hearts).
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